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Thread: lyme disease

  1. #1
    Registered User kyerger's Avatar
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    Default lyme disease

    I got back about ten days ago from a hike through SNP. A week ago I woke up with leg joint pain and thought nothing about it. Thre days ago I went to my Dr. because I felt bad all over,temp of 102,very painful leg joint pain,nausa and headack. I thought I had Lyme disease, but he disagreed because there was no bull's eye rash. During the hike I took five small ticks off my wife but found none on me. Today,Sunday, I woke up and found a Bull's eye rash on my inner thigh and still have headack with low grade fever and a stiff neck. I don't want to go to the ER room and want to wait to see the Dr. on Wed. 3 days away. Is this smart? If I do have Lyme disease i want to go hike next month too. Any Information you have will be helpful.

  2. #2
    Lyme Disease, its not a choice, its a way of life! FurTrappers's Avatar
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    kyerger,

    My advice would be to go to the ER. You stated it was TEN days ago, now your going to wait a few more? Also, seems like your Dr. wasn't to concerned about it before!! Go a head and get the antibodTics from the ER if you can. Its always been said, that if its caught within the first two weeks your good to go, so again, why wait.

    Just my advice, but heck, what do I know!
    Fur.....

  3. #3
    Captain Fantastic's sidekick soad's Avatar
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    get your behind to the ER, lyme is NOTHING to mess around with.

  4. #4

    Default

    Quote Originally Posted by kyerger
    I don't want to go to the ER room and want to wait to see the Dr. on Wed. 3 days away. Is this smart?
    No! No! No! My wife waited that long in 1992, and regrets it to this day. She was VERY VERY sick. If you're reading this now, go get your meds IMMEDIATELY!
    'All my lies are always wishes" ~Jeff Tweedy~

  5. #5
    Registered User kyerger's Avatar
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    I just got back from the ER. I was Dx'ed with Lyme disease. They gave me 2 weeks of antibotics and said i should be trail ready 1st of Aug. Lyme disease does make you very sick. Thank u all for the adivise.

  6. #6
    Registered User Skidsteer's Avatar
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    Quote Originally Posted by kyerger
    I just got back from the ER. I was Dx'ed with Lyme disease. They gave me 2 weeks of antibotics and said i should be trail ready 1st of Aug. Lyme disease does make you very sick. Thank u all for the adivise.
    That's good news, Kyerger(that you're being treated, I mean). Have you given thought to having a stern/firm talk with your M.D.? Some of the reports on White Blaze seem to indicate that more than a few Doctors are dropping the ball when it comes to hikers and Lyme's.
    Skids

    Insanity: Asking about inseams over and over again and expecting different results.
    Albert Einstein, (attributed)

  7. #7
    Do-it-yourself pepsi can stoves - $20 each. Amigi'sLastStand's Avatar
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    It amazes me that in states where Lyme isnt super prevalent, the docs dont error on the side of safety. In NJ and NY, they dont even mess around, "You were near ticks and have a fever, he's some levaquin." So to all of you, no matter where you are, demand treatment from your doctor for Lyme at the first suspicion. It is nothing to f around with!
    You are in heaven.

  8. #8
    GA->ME '04 Dharma's Avatar
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    Agreed, I had deer tick bites (and had the critters on me in a zip lock) and the doc gave me a scrip for 1 doxcyclene pill. Being from CT I'm used to getting a full presciption just for having been bitten. (This was a non-New England doctor.)

    Anyhoo I took my pill and felt fine until weeks later when I took a few days off in MA. Then the symptoms hit me like a ton of bricks. I went to the ER and they hit me up with pills no questions asked.

    After Big-K I saw my local doctor and got a blood test. I did not have Lyme disease but had ehrlichiosis and babiosis. (neither will give you the classic bullseye). I got another round of meds, doxcyclene and quinine.

  9. #9
    Registered User orangebug's Avatar
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    Goggle Lyme Disease and print some up for your Doc. Consider getting articles from NEJM (New England Journal of Medicine) for his review. CDC has very good stuff.

    The classic sign of bulls eye rash is seen as rarely as 40% of the time. Labs are famously insensitive and error prone. This remains a clinical diagnosis based on history and symptoms. The costs and risks of a course of doxycycline is minimal, while the rare cardiac risks are catastrophic.

    BTW, a prescription for a single doxycycline isn't such a bad idea for someone on a short trip. A few years back, prolly only 3, recommendations were for weekly dose of a single pill while in endemic areas.

  10. #10
    Registered User gregdog's Avatar
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    A week after I came back from hiking the GSMNP in June, I had a fever and bad aches, (felt like the flu). I went to my doctor and told them I had been on the AT, but had not found any ticks on me. They would not give me any meds at all, but took a blood test and said there was no bacteria so it must be a virus. The fever went away after four days, but the aches in my joints, knees, shoulders, wrists, stillo are there. I don't think it meets my insurance requirements for an ER visit so I'm looking for another doctor, in the Raleigh area where I work, that might be more aggressive in treating this, incase it is a tick-bourne problem. Still not sure if it is though....
    greg

  11. #11
    Registered User kyerger's Avatar
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    My doctor was not in the office the day I went but another young doctor was. I agree now that he should have given me the antibiotic anyways.
    Next time I see my regular doctor, I am going to bitch to him about the situation. My regular doctor is excellent.

  12. #12

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    Kyerger, What a hassle huh!?..I got diagnosed last Monday after feeling the same way for 3 1/2 weeks..It took that long for the rashes to put me over the top and get to a Doc..I'm assuming I cought it somewhat early but was curious about the prescription and dosage you got..I've heard my dosage of 100 mg of Doxy twice daily may or may not be enough. I've only been on it for a week and its cleared the rashes but i'm definately not feeling myself yet..Any body know of a Lyme literate Doc in Connecticut area?..I'm afraid my reg doc sucks and wanna have a specialist on deck just in case I need one...Thanks

  13. #13
    •Completed A.T. Section Hike GA to ME 1996 thru 2003 •Donating Member Skyline's Avatar
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    Had similar experiences mid-June. Just finished two weeks of doxy, and feel much better. Had my regular doctor been available (he was off having surgery!) I could have obtained an Rx with just a phone call. He knows I spend 35 to 40 weekends plus a couple longer trips a year in the woods and will take my word for it if I suspect ticks. I do believe I had invasive tick(s) late Spring.

    Instead, I had to go to the local ER where they would not listen to me until five hours later when they agreed with me after all that I had a tick-borne infection and gave me the exact same Rx (can't wait for the bill, which I will have to pay in full since I haven't met my '06 deductible).

    Initial diagnosis at the hospital was Erlichiosis (based on microscopic study of a blood smear) but blood sent out for lyme confirmation came back negative. Go figure. In any case, the Rx seems to have resolved it.

  14. #14
    excuse_me_please
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    Exclamation Two weeks may not be enough.

    Standard recommended treatment for (early) Lyme Disease is doxycycline 100 mg twice a day for three weeks (21 days). Other antibiotics are sometimes used and the length of the course may vary but this is the standard treatment.

    You might want to check with your regular physician just to be sure.

  15. #15
    Registered User orangebug's Avatar
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    Quote Originally Posted by smsully
    ...Any body know of a Lyme literate Doc in Connecticut area?..I'm afraid my reg doc sucks and wanna have a specialist on deck just in case I need one...Thanks
    That is one of the most ironic questions I've seen in a long time.

    Conneticut should be crawling in Lyme literate Docs, almost as many as deer tics that can fit on a quarter. There has been a fad of overdiagnosis and making a political issue of Lyme disease. Years of IV antibiotics and other useless therapies have made a few folks dubious of anything to do with the condition. The history of discovering the disease was also faught with doubt and controversy.

    The labs are simply not as useful as anyone would like. The disease is often minor and never presents to a doc. The occasional severe infection can be a disaster. The treatment, doxycycline, is cheap and fairly free of adverse events - and probably a safe way to cover our doubts/asses. However, docs are also counseled to avoid prophylactic antiobiotics, or antibiotics in absence of cultures and psotive tests.

    Hikers might want to discuss this with their docs prior to getting ill and plan on how to deal with non-specific fevers/malaise/possible rashes before spending time in the woods.

  16. #16

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    doc. in CT???? you can go to www.lymenet.com and ask them because when i have been reading the forum they talk about a great lyme doc. who everyone there speaks very highly of him......... and i think he is in ct...
    goodluck
    lisa

  17. #17

    Default

    Lyme sucks man, I hate ticks, they are like tiny little democrats that aren't so fat they stick out a mile away.

    If I had a dollar for every tick in my backyard right now, I'd be bill gates.

    I'd rather die of cancer from too much DEET and pesticides than rot away from the lyme.

  18. #18
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    Default found some good info on lymes disease here

    http://www.peaksurvival.us/Lymes_Disease.html

    and some concise and too the point advice on posinous snakes in US

    http://www.peaksurvival.us/Venomous_Snakes.html

    has anyone had experince of a snake bite on the AT what did they do, and where they ok.

    Appreciate feedback

  19. #19
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    Hey, I picked up Lyme Disease hicking the PA area of the AT. The tick wasn't even on my that long. I showed symptoms a little over 2 weeks later. It's now been 3 months and I have been getting IV medication for the past 4 weeks. The sooner she gets treated, the better. Watch the show "under our skin" It's an eye opening documentary about the disease, I just saw it this weekend. Scared the hell out of me.

    The problem with doxy, is that the disease travels into the brain if not treated immediately. Doxy doesn't do anything for the brain, ceftriaxone does. It's also an expensive drug from what the dr's have been telling me.

    I'm in the military, 31 years old, in great shape, but the disease knocked me on my butt.

    If you need any info, PM me.

  20. #20
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    I hope you are on the mend.

    What symtoms did you show?

    I have eyesight issues, so I try to be aware of the after part. See a deer tick?

    Maybe on my best day.

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